Richard Engel's 6-year-old son Henry dies

Richard Engel’s 6-Year-Old Son Henry Dies

Henry Engel, a 6-year-old boy who had been battling the rare hereditary neurological condition Rett Syndrome for years, has away, according to Richard Engel. The 48-year-old top foreign correspondent for NBC News tweeted the tragic update on Thursday. According to a memorial page on the Texas Children’s Hospital website, Henry, whom Richard and his wife Mary shared, passed away on August 9.

“Henry, our dear son, passed away. He glowed with an infectious laugh, the sweetest blue eyes, and a simple smile. He always reciprocated our affection and gave it to us in spades “Engel included a nice photo of his son with his writing.

“Researchers are making incredible progress using Henry’s cells to help cure RETT Syndrome so that others don’t have to suffer from this dreadful condition,” Engel wrote in a subsequent post that included a link to the memorial website.

Rett Syndrome, a rare inherited neurological condition that causes significant physical and cognitive disabilities and currently lacks treatment, was first discovered in Henry in 2017. In May, Engel provided an update on Henry’s health, stating that he had “taken a turn for the worse” and that his illness had “progressed.” Henry received a tender forehead kiss from Engel’s son Theo, 2, in a video that Engel posted on Twitter while Henry was in bed.

“Another one?” Before giving his big brother another kiss in the tender moment, Theo seemed to inquire. For everyone who has been following Henry’s tale, he has, regrettably, taken a turn for the worse, the journalist wrote in the caption of the heartwarming video. “As his health worsened, he got dystonia, which is uncontrollable stiffness and shaking.” He said that after spending six weeks in the hospital, Henry was “finally home and getting affection from brother Theo.”

Henry was “lacking a conductor gene,” according to Engel, who also told  in 2019 that a medical team at Texas Children’s Hospital was “working to design a medicine that could significantly help.”In 2020, Engel spoke candidly about the COVID-19 lockdown’s effects on Henry and his family. Henry was “not doing very well,” he said in a frank piece for Today, given the circumstances.

“COVID has been a complete nightmare for Henry and the millions of other children with significant special needs. Henry, who was 4 at the time, “doesn’t walk or talk. I’d use more colorful adjectives, but you get the point,” Engel wrote. He struggles to properly feed himself. He slumps in his chair. As he becomes bigger, he is hardly able to move on his own.” The married father of two acknowledged that he and his wife “were doing better before COVID,” and that “school was the only place where [Henry] could engage with other children,” which was a tremendous benefit for him.